curlygirl's Cancer Blog
August 10, 2008
| The Wait Goes On | Views: 1092 |
Well, I’d love to post some deep thoughts or even some information about my progress, but I have neither right now. I’m still waiting for the results of my Oncotype Dx test and I won’t know anything until that comes back.
I did get to meet my radiation oncologist last week—a booby prize (yeah, pun intended) for having to continue to wait for my treatment plan. He seems really great. That’s a nice thing.
I really don’t want to start a long string of comments about insurance companies, but I have to say that the big excitement this week was when the company that performs the Oncotype Dx test called me up to tell me that my insurance will probably not cover the test. That’s awesome. I guess they’d rather pay for treatment I don’t need or for a recurrence later on. Brilliant. Tim and I decided to go ahead with the test anyway and work on getting the insurance company to cover it later. I’ll tell you, when I heard they hadn’t started running the test yet, I felt like my head might just pop off my body. I just want my treatment plan and I want to know that it’s the best treatment plan for me. This test is simply necessary for me and my doctors to feel right about what comes next.
So, I’m hoping that I’ll get the results late this week or early next week. Then, I’m hoping but trying not to assume, I’ll get my treatment plan and we can finally get moving. Grr… (That’s a sound of grumpy frustration.)
12.17.08 - 
Auntie Carole 
Thanks for your support -
Sometimes it helps, just to be able to come here and vent. Besides ya gotta love a girl who cab grrrrrrrr, growl…hehehe
Praying everything gets moving
Hugz
Mac
Hey my new found friend and friends here at blog…I am not sure what type of cancer they detected in you but I heard words of concern for insurance on the oncotype DX testing…they will cover it if it is a must have ‘meaning your ono has to submit it as such…meaning famliy history, needing it for treatment plan, etc; but the doc has to submit it this way…there is also a trial out for this that you can sign up for that covers any and all cost and it is never to late to get in it as long as your cancer falls under the guidelines! You can talk with your doc about it and if they are not aware which I am sure they are, but if not I have all the info here and would be more then glad to share it with you!
I fell in the guidlines of the trial but decided against it only because at the time I was so confused and my ono seemed way to eger for me to sign up for this, to the point that he still has me confussed on treatment plan…for some reason or other he does not want to commit to his thoghts on what would be best for me…not that I am wanting him to decide but at least I would like some imput from somone with so much knowledge in this field! But I can say I did have the oncotype DX test done just for the sake of having it done ‘great family history of breast cancer’ insurance picked up the cost and as my luck has seem to be going these days I fell smack dap in the middle of the middle no higher and no lower so this really concercens me to if I should do chemo or not, I said I would if it fell in the middle group at all and then when the test came back in the middle range of the middle I backed out and only because I do not have enough info on what is in my best intrest to live a long and healthy life falling into the reacurrance score and family history!